Each year over 1,000,000 babies are born worldwide with a congenital heart defect. Before Hayden was prenatally diagnosed with Hypoplastic Left Heart Syndrome (HLHS), a severe form of Congenital Heart Disease (CHD), Hayden’s parents didn’t know much about CHD or HLHS. Unfortunately, these acronyms soon became and still remain a daily topic in their house and thousands of other families’ lives.
The Solution Offered by Hayden's Heart
After sweet Hayden passed away at the age of 5 months and 4 days, his parents founded Hayden’s Heart to keep his memory alive by raising CHD awareness and to help other heart families in their time of need. The Hayden’s Heart Grieving Hearts care packages were created to find a way to bring comfort to grieving families who have lost a child due to congenital heart defects. As another way to honor and remember sweet Hayden, his parents have compiled five of Hayden's favorite things into care packages to be distributed to infants in hospitals every year on Hayden's birthday - March 12th.